Annie May Update

This page is to keep friends and family updated on the progress of Annie May.

Here we are…

End of treatment at long last.
Annie’s treatment ended last Thursday. Her bone marrow sample taken that day came back completely clear so all chemotherapy treatment has finished. We will still have to go to Newcastle once a month for the next year for blood test and to see the consultant and after that we will have to go less and less often. The highest risk of relapse is in the next two years so all we can do is hope that this course of treatment has done the trick. Sometimes we wonder how on earth we have got through this and how Annie has been such a strong, brave and incredibly cheerful little girl despite feeling rubbish a lot of the time. We feel very, very proud of her.
The staff and children at Morland school have been a great support throughout treatment for Annie. She had a fantastic end of treatment celebration at school on Friday with Janet Allen face painting all the children in her class as Quirgles. In the afternoon school had a special assembly that Rob and I went along to. Annie was presented with a special award for bravery that we had taken along as well as being given a lovely heart locket from the teachers engraved with ‘Brave Little Lady’. Class 1 had made Annie a special book with lots of drawings of her favourite characters from ‘Frozen’. The school sang ‘Touch the Sky’ from the Disney film ‘Brave’. It’s one of Annie’s favourite songs at the moment so it seemed fitting that I put a few photos from the past 2 years to that music as a way of summing all this up.
Thank you for reading the blog. It has meant a lot that you have been reading and thinking about us.

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No More Steroids!

Final dose of steroids!

Final dose of steroids!

Annie took her final dose of steroids yesterday morning. We have had so many dreadful, tiring, long weeks with Annie struggling on them that we feel absolutely elated that they have now come to an end. A week and a day til the end of all chemo and her final lumbar puncture…

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Easter Holidays

2 weeks, 2 days of treatment left! Final vincristine chemo and last 5 days of steroids on Thursday. Nearly there.

Hadrian's Wall

Hadrian’s Wall

Roman Soldier at Vindolanda

Roman Soldier at Vindolanda

Gruffalo Trail, Whinlatter Forest

Gruffalo Trail, Whinlatter Forest

Puppets at Upfront

Puppets at Upfront

Easter Egg hunt with cousins Beth and oscar

Easter Egg hunt with cousins Beth and oscar

Waiting for school bus in Easter bonnet

Waiting for school bus in Easter bonnet

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Annie’s Army

Inspired by Annie’s teacher Mrs Bousfield signing up to do the Great North Run we now have Mrs Anderton, the Head Teacher of Morland School and Rob (yes, Annie’s Dad Rob!) and hopefully his friend Mat signed up to do it! All doing it to raise money for Leukaemia and Lymphoma Research. Very exciting. JustGiving and other sponsorship details to follow….

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Winnie The Witch

Winnie The Witch

World Book Day at last!

Winnie about to fly off to school

Winnie about to fly off to school

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Almost there…

Now that week 100 of treatment has been and gone it feels like we’re free wheeling towards the end of treatment. Just over 2 months to go and we’re all feeling like the end of treatment can’t come soon enough. Annie has had a cold that she can’t seem to fight off since New Year but is not particularly unwell with it.

We had to move out of the house for the best part of 5 weeks at the start of January after we discovered that the waste pipe in the kitchen had been leaking for what must have been quite a while resulting in the whole kitchen being pulled out and Rob doing a major makeover in there to the extent of revealing previously covered up beams and a huge sandstone fireplace. All brilliant but dirty and dusty work which made the house unfit for Annie to be in. We’re now back home and just waiting for plumber and electrician at the end of the week to make our lovely new kitchen usable.

Lambing is in full swing on the farm. Annie is having to keep away from anything to do with it as she could become very poorly if she has contact with sheep.She loves the lambs and will be one busy little girl feeding them pet lambs this time next year! Nanna will certainly be glad of the help. 

Annie is making good progress at school, especially with her reading and can’t get through her school reading books quick enough. It’s world book day on Thursday and Annie is counting down “how many more sleeps ’til book day?” She is dressing up as Winnie The Witch for it and Nan has been busy sewing coloured ribbons on Annie’s witch’s hat for her outfit. She has started to have some singing lessons along with her ballet – her own idea!! She can put on quite a performance for us now! 

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When Annie met Fern

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Annie’s teacher, Mrs Bousfield, told us last week that Annie has inspired her to do The Great North Run later in the year to raise money for Leukaemia and Lymphoma Research. We feel so moved that she has chosen to do it for that charity. I could hardly think about setting off on a jog never mind do the Great North Run! She is going to be setting up a JustGiving page and I’ll put a link on here nearer the time. We’ll certainly be heading over to cheer her on on the day. 

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Fern

Annie’s new cousin, Fern.

Fern arrives! (and flood) 014

Fern arrives! (and flood) 017

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Christmas 2013 photos

Christmas Eve. Sprinkling magic reindeer food given to Annie by my Nanna's cousin, Mary.

Christmas Eve. Sprinkling magic reindeer food given to Annie by my Nanna’s cousin, Mary.

Christmas Eve. Annie with Mary &  Joseph posada figures just before taking them to the crib at Morland church.

Christmas Eve. Annie with Mary & Joseph posada figures just before taking them to the crib at Morland church.

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Playing with her new train set in her Sleeping Beauty dress on Christmas morning

Playing with her new train set in her Sleeping Beauty dress on Christmas morning

Come on out baby Hardy, I want to play with you!

Come on out baby Hardy, I want to play with you!

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Happy New Year!

Here we are in 2014 at last…and counting down the weeks and keeping our fingers well and truly crossed that we will get to that finish date in May without any problems.
Thank you to everyone again for being so supportive through another difficult and tiring year of treatment.
The year has got off to a very exciting start with the arrival of my sister Anna’s beautiful little girl, Fern, on 12th January. Annie has not met her yet and has gone from screaming with excitement that the baby is a girl to being upset that she’s not the baby in the family any more!
Christmas was lovely this year as Annie managed to stay well right through. Many members of the rest of both mine and Rob’s families were ill over Christmas so we mostly had a quiet time by ourselves. Santa brought the Sleeping Beauty dress and shoes and nature books that she asked for in her letter along with a mountain of other goodies and some great gifts from family and friends.
On 2nd Jan the three of us went up to Edinburgh to see The Lion King. It was fantastic! Really quite an experience and a lovely way to finish the Christmas holiday.
Annie missed most of her first week back at school as she had chemo on the Monday and had a difficult, sleepless week on steroids after it. Back to (sort of) normal this week and this morning her class have been at Shap school trying cheer leading and taekwondo. We’re bracing ourselves for a stunning display of her new skills when she comes home!? Annie was given her Stage One certificate at swimming last night and is feeling justifiably proud of herself.
As we approach the end of treatment we have some celebratory fundraising events in mind for this summer…watch this space…

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Its beginning to look a lot like Christmas…

letter to santa 2013 003

This is Annie’s first ever letter to Santa that she has written herself. We can’t believe how qickly she has come on with her reading and writing since she started Morland Primary School. We feel very proud of her.

This week Annie has been coming home singing ‘Christmas Is Coming, The Goose Is Getting Fat’, ‘ and ‘O Little Town Of Bethlehem’ and is delighted that she will be an angel in her Christmas school play (angel dress, tights and halo ready and waiting in her wardrobe). Life feels very different to this time a year ago

Not sure if this will work but please click on link to see Annie’s message from Santa.
http://www.portablenorthpole.com/watch/gHNMtH7GUuVdXgDaGLrGgHg
She was so delighted to see Santa with his big book about her and even a photo of us all at Disneyland! Best of all, Annie is on the NICE list! Well done Annie.

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