Annie May Update

This page is to keep friends and family updated on the progress of Annie May.

Really really tired!

on August 2, 2012

We ended up back in hospital again for three nights last Saturday.  Annie’s temperature shot up  and because she can’t fight off any illnesses at the moment she had to stay in to have nine doses of antibiotics given through her line. As she was so neutropenic they could not continue with the four doses of chemo due to start this week and it has been put back to start next Tuesday. Annie’s haemoglobin count was low when we were due to leave hospital on Tuesday morning and we ended up hanging about waiting for a blood transfusion and although we had been ready to leave as soon as we got up it was 5.30p.m. before we set off home.

All of this following on from the weeks of sleepless nights with side effects of steroids has left all of us exhausted. Annie is now sleeping much better through the night but is not going to bed until 10p.m. -ish and so Rob and I have no “time off” from her demands! She is much more perky and enjoying playing with her toys. She seems to want to be inside playing quietly more than rampaging about outside but I think that’s because she is tired and has a lot of sleep to catch up on.

Annie has lost almost all of her hair now. She just has the softest blonde hairs left, it’s like baby hair again. We’ll need to be extra cautious about protecting her head when we are outside now. Seeing the other kids at hospital it’s amazing how quickly it comes back. There are so many children who we met when Annie was first admitted to hospital in March that had no hair then and now look completely different with hair!

We’re getting a good way through this intensification period. Fingers crossed she will be well enough to continue next week and we can just get it behind us.

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