Annie May Update

This page is to keep friends and family updated on the progress of Annie May.

Its beginning to look a lot like Christmas…

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This is Annie’s first ever letter to Santa that she has written herself. We can’t believe how qickly she has come on with her reading and writing since she started Morland Primary School. We feel very proud of her.

This week Annie has been coming home singing ‘Christmas Is Coming, The Goose Is Getting Fat’, ‘ and ‘O Little Town Of Bethlehem’ and is delighted that she will be an angel in her Christmas school play (angel dress, tights and halo ready and waiting in her wardrobe). Life feels very different to this time a year ago

Not sure if this will work but please click on link to see Annie’s message from Santa.
http://www.portablenorthpole.com/watch/gHNMtH7GUuVdXgDaGLrGgHg
She was so delighted to see Santa with his big book about her and even a photo of us all at Disneyland! Best of all, Annie is on the NICE list! Well done Annie.

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Photo by Karen Captures

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Disneyland

Back at the start of summer we had a phone call one morning (as we were literally dashing out of the door on a trip to RVI) from Leukaemia and Lymphoma Research to invite us to join some of their representatives and other families affected by leukaemia on a trip to Disneyland Paris. We could hardly believe it. Naturally, we accepted the invitation!
The Alternative Hair Show is held in London each year and is organised by Tony Rizzo. Following the death of his son, Valentino, Tony Rizzo launched the Alternative Hair Show in 1983 to help raise funds for Leukaemia & Lymphoma Research. The show raises money to send familes affected by leukaemia from around the UK to Disneyland, Paris to spend some extra special time together, as a family and with others who have been through a similar experience. I think (still not sure) that we were nominated because of our fundraising and also because we have shared our experience through the blog and through local newspaper articles and my interview on radio Cumbria.
Needless to say, we had a fabulous time. The VIP treatment was amazing. Great hotel, food, Wild West Show at night, a special meal where all the children met Minnie, Mickey and Pluto, special passes so that we didn’t have to queue for any of the rides…Wow! Annie had the best time ever (and we enjoyed it too!). We would never have thought of going to Disneyland but now Annie is crazy about Disney and it seems to have rubbed off on us too. So much so that at the end of October we took Annie to Disney on Ice in Manchester and we have booked to go to see Lion King in Edinburgh during the Christmas holiday. Disneyland really was a magical experience for us and I found myself welling up with tears all the time. When you have your head down just getting on with treatment and everything else you just don’t stop and think and realise quite what you’ve been through. Now that the end of treatment is (fingers and toes crossed) almost in sight, the enormity of what we have been through is starting to hit us.
We are still talking about the trip most days and thanks to the joy of youtube Annie can watch the parade and lights/fireworks show whenever she likes…which is quite often! We feel incredibly lucky to have been chosen to go and will remember the trip for a very long time to come.

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Our AMAZING trip to Disneyland, Paris in pictures

Annie's favourites Chip n Dale go by in the parade. (Annie in white T-shirt on Rob's shoulders)

Annie’s favourites Chip n Dale go by in the parade. (Annie in white T-shirt on Rob’s shoulders)

With all the families on the Leukaemia and Lymphoma Research Disneyland Paris trip.

With all the families on the Leukaemia and Lymphoma Research Disneyland Paris trip.

All the families. Tony Rizzo in black T-shirt in foreground organises The Alternative Hair Show in London each year to raise money to fund the trip.

All the families. Tony Rizzo in black T-shirt in foreground organises The Alternative Hair Show in London each year to raise money to fund the trip.

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Magical Disneyland at night

Magical Disneyland at night

Annie with her favourite character

Annie with her favourite character

Scream if you wanna go faster!

Scream if you wanna go faster!

Mum's Disney dream comes true and she gets to ride on the spinning tea cups!

Mum’s Disney dream comes true and she gets to ride on the spinning tea cups!

Meeting Mickey at our hotel

Meeting Mickey at our hotel

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Waiting for the train at Penrith

Waiting for the train at Penrith

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Sunflower Race

winning sunflower2

winning sunflower

Hoping to bring things uo to date by starting with a couple of photos of the winning entry in The Great Sunflower Race 2013. The Evans family from Calthwaite won with their sunflower measuring 292cm. Our own were nowhere near that but they were incredibly beautiful and attracted so many bees into the garden. We sold about 400 packs of seeds. Thank you so much to everyone who took part and helped us raise money for Leukaemia and Lymphoma Research. We hope that you enjoyed growing your sunflowers as much as we did.

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Our sunflowers

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